It's official... I am "sick and tired" of being "sick and tired"!
Last night I went to the Wal-Mart Pharmacy to pick up a prescription for another (sigh) UTI. As I approached the counter, the pharmacist, quickly recognized me and attempted to guess my last name. Thankful, she got it wrong, otherwise I think I would have cried (okay, so that would be a little over dramatic... but you get the point). She did reassure me that one of these days she was going to have it memorized. Just why would there be a need for her to memorize my last name... 'cause I practically live at the place these days!
On Monday I will go in for surgery number two, in less than two months! I am finally working with a urologist who is actively seeking a solution to my problems and not just treating my symptoms. It will be an exploratory type surgery to get a better look at my urinary system. It is his impression that I could potentially have an ectopic left ureter. Your ureter is what carries urine from your kidneys into your bladder (you have two, one on each side). If it is ectopic, it means that it has an insertion point other than the bladder. All of my tests, procedures and symptoms, thus far point to this diagnosis, but as I have come to learn, there is no guarantee this is what they will find.
Of all the uterine abnormalities, a unicornuate uterus is most often seen with some sort of renal (kidney) anomaly as well. For many patients diagnosed with a unicornuate uterus, it is discovered that they only have one kidney or a misshapen kidney. Thankfully, I have both kidneys, but it is sounding like I could have some abnormalities in other parts of that same system. If an ectopic ureter is found, there are two solutions. The first and most appealing, is if my kidney is found to be functioning properly; they can just re-route my ureter. The second scenario, would be if my kidney is found only producing water instead of urine. If this is the case, they would have to remove my left renal system (kidney, ureter) entirely.
I never would have imagined that the health problems I have endured would be so closely related and stem back to one simple diagnosis of a unicornuate uterus. For the majority of my life, they were treated as individual issues/symptoms. It is now clear that it needs to be treated as one whole condition with multiple medical issues stemming from it. I have adjusted to being the science project to many doctors as they observe my rare medical scenario.
I have to admit I am almost hopeful that it is an ectopic ureter. It seems a little strange to hope for such a diagnosis as this, but it would mean an answer and a solution. An answer to so many frustrating and wearing health issue. It would potentially mean no more UTI's or kidney infections. I have imagined the doctor informing me of the diagnosis and there being tears of joy rather than of sadness. Joy that I might not have to live the rest of my life being "sick and tired". Joy that we may soon be able to start IVF treatments, and thus our family, without another odd fighting against us. It seems to be a dream worth dreaming...
Thursday, March 19, 2009
Subscribe to:
Post Comments (Atom)
I will hope and pray that you have an ectopic ureter then...
ReplyDeleteIt sounds like that will be a solution to many hard things!
I hope everything goes well and that you recover quickly.
Hope your surgery went well and you got a good diagnosis! Thinking of you!
ReplyDeleteOh, my goodness, Kara, I am so late reading this post! I said hi to you on Sunday and had no idea you had had surgery again!
ReplyDeleteI hope you are feeling better, and that this beautiful weather is helping to keep your smile on. :) I am excited that things seem to be progressing with your health--problems being ironed out.
Love,
Michelle
P.S. I want to try making sushi sometime, and was thinking it would be so fun to do it with you. Want to set a date? :)
Oh Kara, what a journey you are on. We truly pray that the bumps along the way that cause pain and time will one day pay off. We pray that this doctor might be able to correctly diagnose and help you in miraculous ways. You are in our thoughts and prayers.
ReplyDelete