A Year Lost...

I know I haven't posted in a while...I seem to be at a lose for words these days (which is a rare for me), but don't worry, I may make up for my lack of words in this post- Be prepared!

Over the past several days, I have done a great deal of reflection upon this past year. I always send out a yearly update with my Christmas card that reflects upon the events of our lives over the course of that year. They are usually accomplishments we made, adventures we took, or big events that happened. This year I sat in front of the computer, just staring at a blank page with absolutely nothing to say to my friends and family regarding anything that would appear exciting to them. Our accomplishments (if you could call them that) have been much more internal.

This year has been made up of doctor's visits, hospital stays, tests, diagnosis', incisions, needles, pee cups, catheters, medication, and tears. Lots and lot's of tears. Outside of that, we have accomplished very little. In a sense it has consumed our lives, especially mine.

We set out on this journey around September of last year. I was officially sick of being sick, and desperately ready to start a family. I began to gather my medical records from the many escapades to the doctor taken in my youth. I did heavy research on the doctors and hospitals in the area. After years of pushing it to the side, I was hoping I would wake up one day and all of my medical problems would have magically disappeared. But that was simply not the case. I had to face the reality that if I ever wanted to be healthy and start a family I was going to have to be a bit more proactive.

It was not an easy journey and it has seemingly consumed a year of my a life. Six doctors, eight surgeries, nine incisions, ten tests, and countless IV's, shots, and urine specimens.I started this year with a surgery in late January and I am closing it with another major surgery at the beginning of December. I am left spending my December childless, on bed rest with a catheter, and an undecorated Christmas tree (I know that it sounds grim, but there is just no way for me to sugar coat it).

I am typically an optimist, one who hates to be around those who are always complaining about their circumstance rather than making the best of what they have been given. Although, my optimism is a little more dim than in years past, I am well aware that the Lord has been by my side, that he has carried me when I could not stand and that his hand has been in all things. I am unbelievably grateful for the team of doctors that have played such a role in diagnosing and treating my conditions. I am grateful for the technology that exists, making their diagnosis and treatments possible. My heart is so full of thanks to the countless prayers offered on our behalf.

In some ways I feel as though I have lost a year of my life, but I am in hopes that because of this year lost, I will gain many more. I have piles of papers and magazines that have stacked up, thank you cards that have not been written, blog postings that have not been made, pictures that have not been taken, and deep cleaning that has not been done. When I wasn't at the doctors, I was working, and when I wasn't working, I was trying to stay ahead, but I was really just falling behind in life and in sleep. My body feels pretty beaten up and exhausted.

Another Surgery:

In a sense, I am at the end of my rope or in other words running out of options. If this next surgery/doctor isn't able to correct things there really isn't much else that can be done.

In early December we drove to Jackson, MS to see a doctor I had never met before, for I surgery I knew very few details about. We were referred to this doctor by my urologists here in Little Rock who had already earned my full trust. We were told that there was only a handful of doctors in the country that could preform this surgery. We were very fortunate that the best one was only 4.5 hours away in Mississippi.

We arrived Tuesday December 1st for my 1 o'clock appointment. He looked over my records, asked me a few questions, did a vaginal exam, and within about 5 minutes gave me a diagnosis of mild female Hypospadias. Female hypospadias is were the urethra opens into the vagina. It is the third most common birth defect in males (with a misplaced opening on the penis), but is extremely rare in females occurring in about 1 in every 500,000 to 1 million births (pretty good odds right...I will add that to my "specialness" list)! The definition of hypospadias, I was already aware that I had, but after years of doctors, surgeries, and personal research...I finally had a name to attach to the definition! And I received that diagnosis after seeing this doctor for 5 measly minutes...he was good! There is very little information about female hypospadias since it is so rare, but more than likely it was caused by my mullerian anomaly which attributed to my uterine malformation.

I informed him that after years of seeing different urologists when I was younger, I was told that I just needed to deal with it and the problems that it caused because there was noway to correct it. I was at total peace when he responded, "well, I am not going to tell you that here". He then scheduled me for surgery first thing on Wednesday, December 2nd.

The surgery went practically "perfect" and we came out with the most "optimal" scenario. I have a few additional scars to add to my collection. My doctor took a skin graft from the vaginal area to rebuild and elongate my urethra, placing it in the appropriate position. He also did a pelvic sling which required an additional deep skin graft taken from the abdomen, along with a 3.5" incision for the placement of the sling (creating an upside down "T" or anchor-like design on my stomach).

With both of these corrections (along with the previous correction of my left ureter done in April), it will "ideally" eliminate my chronic urinary tract infections (UTI), and mild urinary incontinence (which up until today I have never had the bravery to discuss or admit I suffered from on this blog). It is one of those things, that as a child/teenager you hold very close because of the embarrassment from such a condition. The more I open up and share that detail with others, the more I learn that although my scenerio/cause is much different, I am not alone. Many women are plagued with such a condition after child birth and age.

I spent 4 days in the hospital and returned home from Jackson with a urethral catheter. I have not been allowed to sit for 3 weeks while my catherter is in place. I know that sounds like an easy task but it's not! I travel back to Jackson tomorrow to have my catherter removed and x-rays taken to assure that everything healed properly.

The reconstructive operation is very complex, due to the female anatomy and the lack of females diagnosed with the condition. Their are several potential problems that can arise (all of which can be corrected with minor surgery) if things do not heal properly. But in essence, I am fixed! Well, at least as best as I can be. I have a lot of new and improve plumbing, but I am still missing a few crucial parts to conceive naturally. But because of this, I can hopefully live a more healthy life which in turn will allow me to be a better mother when the opportunity is given to me. That is my year...thanks for all of your prayers and support!

P.S. I hope this all makes sense...I am still somewhat medicated from surgery ; )