60 Days and Counting…

"Even miracles take a little time" –Cinderella

 

For Christmas my mom gave me a small table plaque with the above quote from the movie Cinderella. The moment I read those few words they gave peace to my aching heart. When we set out on our journey to become parents several year ago, I never could have imagined I would still be empty handed 5 years later. I am confident that our MIRACLE will come when the Lord feels we are ready, it just may take a little more time than I originally anticipated. 

That same quote has certainly had significant impact on me as my process of healing from my recent surgery has been much longer than I or anyone else originally anticipated. 60 DAYS later, I still have a catheter as I have experienced immense difficulty urinating on my own. We have done a great deal of praying for a miracle, praying that further surgery would not be necessary and that I would be able to pee normally. In the Lords time…he has granted me days of triumph, sometime followed by days of sorrow. But the simple fact that I have seen days of triumph are small miracles in my eyes. 

Following my emergency surgery two days before Christmas, my doctor gave me two weeks to try and pee on my own. Much of that time, I saw little, if any progress. The Sunday before the two week mark a few ladies I serve with at church decided to fast for me. We then asked several members of our family if they would also join in a fast on my behalf. That same Sunday, I used the restroom in between meetings at church and to my surprise…I went pee! Words cannot describe the overwhelming feeling that flooded my body as I sat there on the toilet with eyes full of tears. It had taken a little time, but I had truly seen a MIRACLE. That miracle has been followed by several more miracles which have led me through 36 additional days with a catheter. 

I still have a long way to go, but my doctor seems reassured with my resent progress. There are days that I am almost entirely able to go on my own, and other days where I can only get out a few drops. Isn't it funny how we forget to appreciate the simple things that Heavenly Father has blessed us with…like the ability to go pee? I know I certainly took advantage of this simple task until my body wasn't able to do it anymore. MIRACLES can and do happen, sometimes they just take a little time. 

Please continue to pray for my progress…it means so much!

Life is Hard

"We must accept finite disappointment, but we must never lose infinite hope" ~ Martin Luther King

Life is hard, if no one has ever informed you of this fact, let me be the first... "life is hard"! Sometimes I feel like a broken record. After each operation, I find myself saying, this should be it...this should correct things. Only to undergo another surgery, and another, and then another...well, you get the point!

I mentioned in my last post that I was scheduled to have my catheter removed and x-rays taken on the 23rd of December. My mom was to take me down to the appointment in Jackson. After which we were to turn right back around, pick up Dave in Little Rock, and head for New Mexico to be with my family for Christmas. Well, that whole plan came to crashing halt...

As I went in for my scheduled x-ray, there were complication. They fill your bladder with iodine through the catheter and watch on the x-ray monitor as your bladder fills to assure there are not any problems. Then that catheter is removed and they ask you to urinate while they take images of your bladder/urethra as you empty. Notice, they didn't tell me to sit on the toilet and urinate...yes, right there on the bed (which does have a split down the middle) they ask you to urinate! Not to mention you have three other people in the room watching as you attempt to this.

After getting over the fact that this was entirely too weird, I gave it my best shot with no success. Then they pulled out all the tricks. They turned on running water trickling in the sink...no luck. They filled a bowl with warm water and stuck my hand it...no luck. They told me I could try it standing up, so I reluctantly took that option...as you might have guessed, no luck! Finally they gave me a big cup of water and told me to go wait in the waiting room for a few minutes and to come back and try. I did just that, but no luck. At this point, I was becoming a little emotionally distraught about the whole situation. They sent my mom and I down to grab lunch and to return and try again.

While I attempted to eat my lunch in devastation and fear, a nurse came down to the cafeteria and asked us to return immediately. As I waited in the room to see my doctor, my bladder was feeling unbearably full and getting worse by the minute. It is the worst feeling when you desperately need to go to the bathroom, but physically can't. It finally reached the point to where I could hardly breath from the pain and begged for the nurse to come and catheterize me again (the fact that I wanted another one of those things put in me should explain the extent of pain). My eyes were filled with tears as I laid on the bed while two nurses ran in to give me relief.

The doctor decided that he needed to go in and look with a scope under anesthesia along with putting in a super-pubic catheter (a catheter that goes in through your abdomen to your bladder). My mom and I started making calls to family to inform them that I would not be able to come home for Christmas. We had to wait six hours for surgery, as I had eaten earlier that day. I was released from the hospital around 4 PM the following day on Christmas Eve.

I was given a plug for my catheter and told to try and pee normally. If I was able to do that by Monday (December 28th), my urologist here could remove my catheter. Monday came and went and I still couldn't pee. I was told to keep trying on my own with the super-pubic till January 6th. We are three days away and I can't get out more than a few drops. I am hoping for a sudden miracle, but trying to be realistic at the same time. If I do not have success in the next few days, I will have to go back to Jackson for another surgery.

Sometimes I am not really sure if I should be laughing or crying about all this (I have done both simultaneously on more than one occasion). I just wish for once that my body would cooperate and take a step forward rather than two steps back. I am going on my fifth week with a catheter, I spent my Christmas season in bed, I can't go pee, and I have officially decided that life is hard! I know that I have learned a great deal from all of these experiences, but I can't wait for this burden to be lifted. I know my time will come...but in tell then, I am learning to be tough. After all, this life is not for the faint in heart!

A Year Lost...

I know I haven't posted in a while...I seem to be at a lose for words these days (which is a rare for me), but don't worry, I may make up for my lack of words in this post- Be prepared!

Over the past several days, I have done a great deal of reflection upon this past year. I always send out a yearly update with my Christmas card that reflects upon the events of our lives over the course of that year. They are usually accomplishments we made, adventures we took, or big events that happened. This year I sat in front of the computer, just staring at a blank page with absolutely nothing to say to my friends and family regarding anything that would appear exciting to them. Our accomplishments (if you could call them that) have been much more internal.

This year has been made up of doctor's visits, hospital stays, tests, diagnosis', incisions, needles, pee cups, catheters, medication, and tears. Lots and lot's of tears. Outside of that, we have accomplished very little. In a sense it has consumed our lives, especially mine.

We set out on this journey around September of last year. I was officially sick of being sick, and desperately ready to start a family. I began to gather my medical records from the many escapades to the doctor taken in my youth. I did heavy research on the doctors and hospitals in the area. After years of pushing it to the side, I was hoping I would wake up one day and all of my medical problems would have magically disappeared. But that was simply not the case. I had to face the reality that if I ever wanted to be healthy and start a family I was going to have to be a bit more proactive.

It was not an easy journey and it has seemingly consumed a year of my a life. Six doctors, eight surgeries, nine incisions, ten tests, and countless IV's, shots, and urine specimens.I started this year with a surgery in late January and I am closing it with another major surgery at the beginning of December. I am left spending my December childless, on bed rest with a catheter, and an undecorated Christmas tree (I know that it sounds grim, but there is just no way for me to sugar coat it).

I am typically an optimist, one who hates to be around those who are always complaining about their circumstance rather than making the best of what they have been given. Although, my optimism is a little more dim than in years past, I am well aware that the Lord has been by my side, that he has carried me when I could not stand and that his hand has been in all things. I am unbelievably grateful for the team of doctors that have played such a role in diagnosing and treating my conditions. I am grateful for the technology that exists, making their diagnosis and treatments possible. My heart is so full of thanks to the countless prayers offered on our behalf.

In some ways I feel as though I have lost a year of my life, but I am in hopes that because of this year lost, I will gain many more. I have piles of papers and magazines that have stacked up, thank you cards that have not been written, blog postings that have not been made, pictures that have not been taken, and deep cleaning that has not been done. When I wasn't at the doctors, I was working, and when I wasn't working, I was trying to stay ahead, but I was really just falling behind in life and in sleep. My body feels pretty beaten up and exhausted.

Another Surgery:

In a sense, I am at the end of my rope or in other words running out of options. If this next surgery/doctor isn't able to correct things there really isn't much else that can be done.

In early December we drove to Jackson, MS to see a doctor I had never met before, for I surgery I knew very few details about. We were referred to this doctor by my urologists here in Little Rock who had already earned my full trust. We were told that there was only a handful of doctors in the country that could preform this surgery. We were very fortunate that the best one was only 4.5 hours away in Mississippi.

We arrived Tuesday December 1st for my 1 o'clock appointment. He looked over my records, asked me a few questions, did a vaginal exam, and within about 5 minutes gave me a diagnosis of mild female Hypospadias. Female hypospadias is were the urethra opens into the vagina. It is the third most common birth defect in males (with a misplaced opening on the penis), but is extremely rare in females occurring in about 1 in every 500,000 to 1 million births (pretty good odds right...I will add that to my "specialness" list)! The definition of hypospadias, I was already aware that I had, but after years of doctors, surgeries, and personal research...I finally had a name to attach to the definition! And I received that diagnosis after seeing this doctor for 5 measly minutes...he was good! There is very little information about female hypospadias since it is so rare, but more than likely it was caused by my mullerian anomaly which attributed to my uterine malformation.

I informed him that after years of seeing different urologists when I was younger, I was told that I just needed to deal with it and the problems that it caused because there was noway to correct it. I was at total peace when he responded, "well, I am not going to tell you that here". He then scheduled me for surgery first thing on Wednesday, December 2nd.

The surgery went practically "perfect" and we came out with the most "optimal" scenario. I have a few additional scars to add to my collection. My doctor took a skin graft from the vaginal area to rebuild and elongate my urethra, placing it in the appropriate position. He also did a pelvic sling which required an additional deep skin graft taken from the abdomen, along with a 3.5" incision for the placement of the sling (creating an upside down "T" or anchor-like design on my stomach).

With both of these corrections (along with the previous correction of my left ureter done in April), it will "ideally" eliminate my chronic urinary tract infections (UTI), and mild urinary incontinence (which up until today I have never had the bravery to discuss or admit I suffered from on this blog). It is one of those things, that as a child/teenager you hold very close because of the embarrassment from such a condition. The more I open up and share that detail with others, the more I learn that although my scenerio/cause is much different, I am not alone. Many women are plagued with such a condition after child birth and age.

I spent 4 days in the hospital and returned home from Jackson with a urethral catheter. I have not been allowed to sit for 3 weeks while my catherter is in place. I know that sounds like an easy task but it's not! I travel back to Jackson tomorrow to have my catherter removed and x-rays taken to assure that everything healed properly.

The reconstructive operation is very complex, due to the female anatomy and the lack of females diagnosed with the condition. Their are several potential problems that can arise (all of which can be corrected with minor surgery) if things do not heal properly. But in essence, I am fixed! Well, at least as best as I can be. I have a lot of new and improve plumbing, but I am still missing a few crucial parts to conceive naturally. But because of this, I can hopefully live a more healthy life which in turn will allow me to be a better mother when the opportunity is given to me. That is my year...thanks for all of your prayers and support!

P.S. I hope this all makes sense...I am still somewhat medicated from surgery ; )

Thankful

Through all of this adversity, I am still well aware of my blessings and I know I have a lot to be thankful for. I have had several people make the comment that maybe the reason we are in Arkansas is to get all of my medical "stuff" straightened out with the "right" doctor. I am not sure I could say that was the only reason we were sent here but I do feel that it has maybe played a major roll in our being here.

I have seen six urologists in three states over the course of 13 years and it wasn't untill a few months ago that one of them, Dr. Brizzolara, had an answer for me (and better yet...a solution). I am so thankful for my amazing doctor here in Arkansas. He has earned my total and complete trust and has shown me compassion, concern, and understanding. He went out of his way to check on me during my hospital stay, often coming at 4:30 and 5 in the morning before he went into his office for work.

I am grateful for Dr. Moutos, my wonderful fertility doctor, that started this recent medical journey for me. He acted quickly to find the problem and he gave me hope that I might could get pregnant though IVF. He explained in detail but yet in simple language what a unicornuate uterus meant and how it would affect me. He gave me fascinating pictures of my "insides" from my HSG and laparoscopy and jokingly told me that I could put them to my scrapbook.

I am so thankful for the amazing technology that was available to both of these amazing doctors that they were able to diagnose and treat my problems so effectively. I am thankful that I have the option of IVF available to me so that one day I might be able to carry my own child. It is quite amazing what they can do now compared to just 10 or 20 years ago.

I am not typically a big fan of taking pills, but I have certainly come to appreciate them a little more latley. I am thankful for pain medications and epidurals so that all these procedures that I have undergone would be a little more bearable. I am grateful for antibiotics which have saved my kidneys from further damage from infections. I appreciate that I am not afraid, and never have been, of needles because I have had alot of them poke me. There have also been several other medications that have helped me along the way to improve my way of life and allow me to function when I otherwise might have not.

I am grateful for good health insurance making my care both possible and financially feasible. I am grateful to my husbands company for allowing him to take time off work frequently without using vacation pay to be at my appointments and procedures. I am so thankful for my husband and his love and support through times when I am sure I was hard to love and support. I appreciate the many times when he has simply held me while I cried.

And last but certainly not least, I am so thankful for my loving Heavenly Father, who knows me and has never left me through my times of struggle. I am grateful for his hand in all of these amazing blessing that I have listed above. It is by him and through him that I am still standing. I know I have a lot to be thankful for and these are just a few...

The Lords Sense of Humor

A few weeks ago I was asked to speak in church. I find that I love the opportunity to write my talks, I just never particularly love giving them. The subject I was asked to speak on was "Finding Strength in Challenging Times". Coincidence....I think not. Now what seems to make this situation a little more humorous is the fact the just over a year ago I was asked to speak on Mother's Day regarding "Motherhood".

As you might imagine, both subjects were extremely hard for me to share my thoughts and feeling while attempting to stay composed in front of a congregation. I have mentioned several times that I am typically not an emotional person (although the Lord is trying to prove otherwise). If you have ever discussed my situation and circumstance with me you have probably found that I am fairly emotionless regarding the topic. I guess this is my way of coping and attempting to appear stronger than I sometimes think I am. I have found (especially over the past three months), it has become less and less easy for me to hold back the tears when discussing such a subject. I find that even the site of a new mother and her little one, or walking by the children's department in a store, will make my eyes welt up with tears right on the spot.

I decided I would simply just read my talk to the congregation in hopes that I might keep my emotions in check. I stayed fairly composed for a subject that has become dear to my heart over the course of this year. I wish to share some of what I gathered for my talk... my emotions on the subject, and excerpts that I shared on "Finding Strength in Challenging Times".

I have often wondered how anyone could possibly make it through this life, which is filled with hardship and disappointment, without the knowledge and testimony in the Gospel and our Lord and Savior, Jesus Christ.

At a young age I had to decide for myself how I wanted to get through my trails. I had to make up my mind whether I wanted my Father in Heaven on my side or if I wanted to fight against him. At the tender age of 12, I underwent a challenging surgery that would forever change the course of my life. I was somewhat forced to grow up quickly as I spent several months in and out of doctors offices and recovering from multiple surgeries all in hopes to find an explanation or solution to several medical mysteries.

There came a day where the thoughts and feelings of bitterness towards the Lord and my then current situation, crept into my mind and heart. In my 12 year old mentality, I was trying desperately to understand the burning question in my mind, "why me?" It was typically followed by the classic second half to this question, "what did I do, to deserve this?"

The way I saw it, I had two options: I could either blame the Lord, or learn from this experience. Thankfully, over time and through much prayer, I chose option number 2 and it has made all the difference in my life.

In D&C 122:7 we read, "All these things shall give thee experience, and shall be for thy good".

I have tried to keep this in mind as I have continued down a road that sometimes feels to be far off course than what I had mapped out for myself. I often try to convince myself that because of these experiences, I will appreciate motherhood and my future children all the more.

Alexandre Dumas, in his classic tale The Count of Monte Cristo, wrote, "For the happy man prayer is only a jumble of words, until the day when sorrow comes to explain to him the sublime language by means of which he speaks to God."

Unfortunately, for many of us, it takes a challenging time or trial in our lives to finally bring us to our knees. As Quoted in a talk given by Elder Rex D. Pinegar, "Our Father in Heaven has promised us peace in times of trial and has provided a way for us to come to Him in our need. He has given us the privilege and power of prayer.

The older I have become the more I have learned that tragic things happen to good people. God does not always cause them, nor does He always prevent them. He does, however, strengthen us and bless us with his peace, through earnest prayer. "We need to pray...for strength to endure, for faith and fortitude to face what sometimes must be faced (The Man and the Message)."

In the words of a popular LDS hymn we sing:

"When sore trials came upon you,

Did you think to pray?...

Oh, how praying rests the weary!

Prayer will change the night to day.

So, when life gets dark and dreary,

Don't forget to pray."

There is no doubt we live in a world plagued with tremendous turmoil, trials, heartache, sorrows, and grief. These are certainly challenging times, but there is peace through prayer and faith in our Lord and Savior, Jesus Christ. I know that the Lord does not abandon us in our times of despair. The Lord knows us, he love us, and he will not leave us to stand alone if we seek his hand in all things. I have felt this through me personal trials, and I am grateful for all I have learned through such an experience.

Medical Jargon

Now that everything has pretty much been diagnosed, I thought I would take this opportunity to "spell it all out" for you. There have been multiple questions from friends and family on my condition and I hope this will clarify my situation and diagnosis in better detail than I have previously done. It's a good lesson in female development that every female should know and understand. It is also my hope that one day this information might find someone who has a similar situation as me to bring them peace to years of unanswered questions and health problems.

Müllerian Anomalies (MA): The uterus, fallopian tubes and upper vagina are made up of two partially fused tubes, which, in embryo development, are known as müllerian ducts (ovaries and lower vagina are not derived from mullerian ducts). These ducts are first present in embryos of both sexes.

In the male embryo, the presence of anti-müllerian hormone (AMH), causes the müllerian structures to disintegrate during early development. They persist in the female because she does not produce AMH.

In females, these ducts run down vertically from flank to pelvic floor in the young embryo and eventually fuse into a double-barreled tube with two loose ends, known as the uterovaginal primordium, or UVP. The double UVP will eventually merge into a single-barreled uterus, cervix and upper vagina, while the loose ends develop into the fallopian tubes. In adulthood, these organs are referred to as the müllerian tract and congenital malformations of this tract are called müllerian anomalies, or MAs.

There are 7 different types of müllerian anomalies. They include agenesis and hypoplasia, bicornuate uterus, unicornuate uterus, uterus didelphys, septate uterus, arcuate uterus, and DES related uterus. I was diagnosed with a unicornuate uterus (UU).

The cause of these conditions/anomalies is fairly unknown. To date, there is no singular cause for müllerian anomalies. Some may be hereditary, others result from an insult to the fetus while in the womb (the T-shaped uterus of fetuses exposed to the DES drug, used to prevent miscarriage between 1940-1970, is the only proven case of this situation), but most cases are simply attributed to random mutation.

Unicornuate Uterus (UU): A unicornuate uterus takes place when one müllerian duct is underdeveloped or fails to develop, causing a banana-shaped half-uterus to form. It may or may not be accompanied by a rudimentary horn, and that other horn may or may not have an endometrial cavity or communicate with the main uterine cavity. A missing kidney or other kidney problems accompany this asymmetric anomaly more than they do other MAs. Adverse pregnancy outcomes are common with UU.

The Statistics: About 2%-4% of women are thought to have some sort of congenital uterine anomaly. Of those 7 anomalies, a unicornuate uterus makes up about 4% (statistics vary) of the total number of diagnosed cases, making it the least common of the uterine abnormalities. About 65% of women diagnosed with a UU will have a rudimentary horn of some kind.

Having a unicornuate uterus unfortunately brings a significant risk of both pregnancy loss and preterm labor, as well as ectopic pregnancies. Of all the MAs, it has shown the highest rate of primary infertility (15%) and the poorest fetal survival (40%). Estimates vary by specific study, but one literature review found pregnancy outcomes in women with unicornuate uteri to be miscarriage in 37%, preterm birth in 16%, and term birth in only 45%.

Doctors believe the miscarriage rate is attributed to abnormalities in the blood supply to the uterus. Per-term labor is thought to be because of space restrictions in the half-uterus and often result in a failed cervix. Doctors may recommend cerclage for women at risk of preterm labor in this situation. It is also found that most babies convieved in a unicornuate uterus will be born breached because of the inability for them to turn properly in preperation for delivary in such a small space.

Kidney System Abnormalities: In the embryo, the müllerian ducts act as scaffolding for the mesonephric ducts, which give rise to the kidneys. Because of this parallel structural relationship, it is common for a kidney or other urinary anomaly to be present with a müllerian anomaly. As mentioned earlier, a missing kidney or other kidney problems accompany this asymmetric anomaly of a unicornuate uterus more than they do other MAs.

Ectopic Ureter: An ectopic ureter is a medical condition where the ureter which carries urine from your kidney to you bladder, terminates at a different site than the bladder wall. In females, the ureters may terminate at the bladder neck/urethra (35%), vestibule (30%), vagina (25%), or uterus (5%). It can be associated with frequent urinary tract infections (UTI), urinary incontinence, and decreased kidney function. Ectopic ureters occur in 0.025% of the population and therefore are extremely rare and often hard to diagnose.

How This Relates To Me: At the beginning of 2009, I underwent an HSG test, which resulted in the diagnosis of the rare anomaly of a left unicornuate uterus. After laproscopic surgery, they found a right (non-communicating) rudimentary horn , which after testing, proved it contained entometerial tissue. This means I was menstruating not only from my left unicornuate uterus but also from my right rudimentary horn. The horn had no outlet, as it was closed off from my uterus, thus my body had been re-absorbing the fluid for roughly some 13 years (I am fortunate it did not result in a rupture).

My left fallopian tube was removed as a teenager (at the age of 12) due to blockage of menstruation upon menarche caused by a vaginal septum. Because my unicornuate uterus is on my left side which no longer has a fallopian tube, there is no communication between my ovary and uterus. Thus, when an egg is released from my ovary it has no path to my uterus to be fertilized (the right ovary and tube are also considered useless since they do not attach to my actual uterus). This results in complete infertility outside of the means of IVF (which then takes into account the risks of the above pregnancy statistics with a UU).

As it is very common for patients diagnosed with a UU to also have an abnormality of the renal (kidney) system, such was my luck. In March of 2009, they discovered an ectopic uterter which had been misdiagnosed for some 13 years. In my case, my left ureter drained into the lower portion of my uterus, which if you read the statistics above, is the most rare of the insertion sites with the presence of such a condition.

Prior to the removal of my above mentioned vaginal septum (at the age of 12), my body had also been re-absorbing the urine drained from my left ureter into my uterus (sounds healthy-huh?). During an extensive surgery, they reconstructed the size of my left ectopic ureter and implanted it back into my bladder (thank goodness for modern day technology). Attributed to years of damage from this condition being misdiagnosed and years of battling infections, I am left with 40% function of my left kidney which will not likely improve.

After a visit to my urologist recently, a nurse at the front desk asked if I was Kara. As I responded yes, she proceeded to tell me, "my goodness...you are one for the history books". I have become quit use to being the "science project" and "show-n-tell" of many doctors. I even jokingly told my urologist that if he wrote about me in a medical journal, I wanted a copy of the article. I try and remind myself that we all have our trials in life...this was simply the one I was blessed to overcome. It brings me tremendous comfort to know that in the life hereafter my broken and somewhat pieced together body will once again be made whole and perfect. I can't wait...

For more information on Mullarian Anomalies, please click here.

Be Careful What You Wish For

I went for my post-op appointment last Thursday in hopes that he would be removing my catheter. It has been causing me a great deal of discomfort at the site where it was stitched into my abdomen traveling into my bladder wall. It also made doing much of anything very challenging unless I was wearing my leg bag. I hated the leg bag...feeling a warm liquid on your leg and knowing it was your urine...not fun! I also never enjoyed walking around with it on and hearing the liquid slosh around. I spent most of my days with my regular catheter bag, but that meant where ever I went in my house I had to have a place to hook it on. Whether it be the rail of my bed, the leg of the chair, a knob on a cabinet, or simply in my hand...life became a little complicated.



Thursday would be just shy of three weeks, so I was desperately wishing that he would be ready to remove it. Dave left work to come and pick me up for the appointment. In preparation for the appointment, I took my strongest pain killer before leaving the house. If he was going to be removing the catheter I wanted to make sure I was drugged up for the experience! Even though he had reassured me that it wasn't going to feel anything like the removal of my incision drain...I secretly didn't believe him.



He came into the room and agreed that because I had an infection and had been experiencing pain around the site of the catheter that it was time to remove it. I questioned him one more time as to whether or not it would hurt like the drain. He attempted to comfort me saying that it would not. He informed me that he never tells anyone how painful the drains are to remove otherwise no one would ever let him take them out. Those words were very reassuring (sigh) because I was beginning to think that I was just the biggest wuss in the world!



The nurse came in to remove it...snipped out the stitches, and told me to take a deep breath. At this point it was all sounding much like what they said when they removed my drain (if this is not making sense, please refer to Wednesday under "My Five Day Stay In The Hospital"). I took my deep breath, somewhat clinching the bed in expectation of sever pain as the tube was pulled from my abdomen. A slight sting was all I felt...you can imagine my relief! She then informed me that the whole in my abdomen would close up within 24 hours.



The doctor returned and instructed me to empty my bladder "often". We then proceeded to discuss how I was recovering. I BRAGGED at the fact that my stent had not really been bothering me, contrary to what I had heard about the PAIN they can cause. This is the point in which I took a massive bit of "humble pie". He proceeded to inform me that I may experience "more pain" from the stent now that I would be urinating normally.





I walked out of the office feeling like I was on cloud 9 (even though I actually threw up on the drive home and several times when I finally arrived home...but that is beside the point). When I returned home, I went pee for the first time in three weeks...whoohoo! It was a little painful, but I figured that was expected since it had been so long. I was exhausted after the big outing and from getting sick therefore I laid down for a nap. Upon waking up my whole world had suddenly changed.



I went to the bathroom again, and again, and again...each time it became more and more excruciatingly painful. I would sit on the toilet shaking in pain as my eyes would water up. I suddenly was very much AWARE of my stent! For three weeks, I had wanted nothing more than for my catheter to be removed and now I could think of nothing I wanted GREATER than to have it back in! And so the saying goes, "be careful what you wish for".



During the day I have to go to the bathroom about every 30 minutes to an hour and at night I have to set my alarm to wake me up every few hours to get up and go to the bathroom. Each time I go, the pain is agonizing, and nothing seems to take the edge off. I have two more weeks with the stent in before it is removed. I have been very humbled by this whole experience. It is ever so clear that now matter how bad something is...there is always something worse.